7-Year Old Girl Born With Heart Outside The Chest Hopes For Surgery [Photos]

A seven-year-old girl, Virsaviya Borun-Goncharova, born with her heart outside her chest is on her way to the United States hoping to have a life changing surgery.

Virsaviya suffers from thoraco-abdominal syndrome or Pantalogy of Cantrell, which affects just five in a million people.

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Virsaviya is heading to the US where she will take medication to lower her blood pressure that, if successful, will allow to have a life changing operation.

The Russian who spoke to the BBC said, 'This is my heart. I’m the only one that has this.'

‘And I just walk around, I jump, I fly, I run. Well I am not supposed to run but I love running.’

Virsaviya was given a short time to live after birth but she has defied all odds to stay alive.

Her mother, Dari Borun, said: ‘Doctors told me Virsaviya had a really rare condition. But they said she won’t survive.

‘When I saw the first time how her heart was beating, of course to me it was something special.

‘It meant that Virsaviya’s alive and she can breathe and she can live.’

She added: ‘I was really upset about that because they kept telling me she will die soon.

‘It’s not easy for Virsaviya to live with her heart on the outside because it’s really fragile.

‘She has to be careful as of course she can fall and it can be really dangerous – she can die from that.’